For three weeks now, I've been struggling to
express my emotions to my readers, or my family and friends, or even just to
myself. I've been on a roller coaster, from joy and relief to absolute
despair. I'm at an utter loss, here, to try and express where I'm coming from.
I've written and rewritten this post almost every day, and I haven't gotten any
further. I hope this is my final draft.
Long story short, I'm now the proud owner of
another medical diagnosis. During a routine physical exam last week, I brought
up some areas of my health with which I had been struggling. My doctor
immediately ordered a huge list of blood tests. This week, I got the diagnosis.
At first, I laughed, because what the heck else was I supposed to do? But then
I cried and I've pretty much been crying ever since.
It's just PCOS, guys. It's not even that big of
a deal, really. More symptoms to manage, more medications to take, but not a
super serious diagnosis, and certainly better than the alternatives. There's a
certain sense of relief in this diagnosis, because it explains completely the
issues that I've struggled with for years and years. I have an answer and a
treatment, and armed with those things I should be able to recover. Maybe six
months from now, I'll look and feel better than I ever have before.
So that’s the good news, and I’m honestly
thrilled to have found this answer. Beneath that layer of happiness, though, I’m
bewildered. How can another thing be wrong with me? How can more of my body be
so broken? I don’t feel like I can manage this on top of my RA, which is still
more out of control than I’d like. I haven’t even lived with RA for a year! I
don’t know how to cope with the summer heat, I don’t know the warning signs for
an impending flare, and I don’t know how to handle myself on those rough days
when I still require a cane.
Why this? Why now, why ever, why me? This is
another lifelong diagnosis, on top of asthma and RA. This requires a constant
monitoring of symptoms and medication side effects. This feels like another
blow, another kick while I’m down.
I'm frustrated with my broken self. Thrilled as
I am to able to express myself freely, and walk, and talk and move (mostly), I
feel more and more like I'm stuck in a defective body that will never work
right, no matter how hard I try. This body will always be ugly, and it will
always be faulty. It will never be what I wanted.
I'm mourning the loss of so many things. I'm not
quite over the grief of losing what were once totally normal, healthy-looking
joints. Sometimes, I still shed a tear for my early 20s, which were supposed to
be filled with all the fun, silly things that newly-freed young adults do. I'm
mourning my education, which has been completely derailed. Now, I have some new
losses to grieve, and they are so tough to overcome. With PCOS comes a number
of reproductive problems, as if I didn't have enough to worry about with the
susceptibility to RA looming in my genetic code somewhere. I'm young now, it's
true, but I feel that my body has already decided my reproductive future for
me, and it didn't ask for my emotional input. To me, as a woman, this decision
that my body has so firmly made is deeply, deeply hurtful. How can I recover
after being dealt such a personal blow?
I hate the expression, "the straw that
broke the camel's back," but after this recent diagnosis, I feel like
nothing else is so appropriate. Coping with my RA has become routine. I've been
managing my pain beautifully, staying positive, and enjoying every day. I've
been so pleased with all my progress. Somehow, one relatively harmless
diagnosis devastated all my progress, and left me miserable. I don't know what
to do with myself, or how to feel better. Where do I go from here?
This is where I'm at right now. Please forgive
me for my inability to communicate, or return phone calls, or answer e-mails.
I'm trying to manage myself, but I can't quite handle it just yet. I'll find
myself and my coping mechanisms again soon. I'm almost kind of positive.
(I am so sorry for this giant, ranty complaint.
I'm frustrated with myself for this meltdown, and I'm wracked with guilt over
the incredibly amount of ungratefulness and selfishness this post displays. It
is what it is, though, and I needed to write. )
